I have never been in remission since I started with Sjogren's 12-1/2 years ago. My rheumie says I'm doing good to be able to just keep going. My ortho says comes back if you can't walk or you fall.

I read somewhere only 25% of DM'ers have pain; then I read somewhere else that it causes excruciating pain, and that's is exactly what I have. It's back in my hips downward now. I've only been two places in 6-1/2 weeks, rode to the grocery store with hubby and went to church Wednesday night, which I haven't gotten over yet.

I don't like to come here when I'm sick; it's a bummer for everyone else, and I don't like to do that!

Wow, the boards are really, REALLY new. It will take a little time for everyone to be back, I'm sure. Jim, I see you on AOL all the time, but haven't felt like talking.

I just want this stuff to reach the "burn-out point" like the peripheral polyneuropathy and let me get settled in with what I have left! I guess that's asking too much though. I have good pain meds but hate to take them.

I think I told you all about hubby's auto accident. The Jeep is a total loss and 3 feet shorter than it was, but glory be to God, my hubby was almost unscathed, even though he was sitting still and rear-ended at 50 mph!

I reached Kathy in the lower part of my state who has DM, and she, in fact, has met another woman in Columbia, which is right midstate. We plan to try to meet in Columbia. That is where we moved back home from after my hubby retired from National Guard/Army. It's the state capital.

God is so good!

The new boards are so nice,I wanted you and our feisty Mary to see them.I was worried about you because it's been quite a while since you popped in to say hi.

I knew you were have some pain but excruciating pain must be terrible for you.Someone was saying they have siatica in their spine and how painful it was.My Mom had something similiar and had to go into the hospital.

I've had sjogren's for about 30 years and it can be miserable.

I knew you wanted to meet someone,in your state, who also has DM,so glad you did.Maybe you can have a mini support group and get out of the house more.

You do not bum us out with your illness,that's the purpose of the board's.We worry about you guys when we don't get at least a hi now and then.

Thank you for the beautiful poem.We all need a lift some days.Tell your hubby we're glad he didn't get hurt.

My sjogren's is secondary to my poly but I also have psoriasis,osteoporsis,and regular arthritis.Do you take any of the new meds for the dryness caused by sjogren's?

My ducts will stop up with white pus and make tracts through my gum and drain that way. Pain was so bad one time my dentist did a root canal just to kill the nerves in a completely healthy tooth to get rid of the pain. I have really been helped along the way as much as hindered.

It's more my eyes tho, these corneal ulcers.

I might give the dry.org a look see.The problems with the sjogren's seem so small compared to the polymyositis problem's.As I'm falling I forget about my dry mouth unless I knock a dry tooth out of it.You sound like you have a more severe case of sjogren's.It's not fun when your jaw swells up like a ping pong ball, just pretend we're chipmunks with our winter's supply of food in our cheeks.

I was dx'd by my dermatologist and immediately reported it to both my primary care, a very good internist, and my rheumie than at Duke University. My rheumie was a specialist in Sjogren's syndrome which I have with underlying mixed CTD. He said he doubted I had DM and that it was in no way related to SjS, both of which were incorrect assumptions on his part. I at the time did not know the ramifications; I thought I just had another skin condition to add to the others. Consequently, I went a year with no treatment at all and did fine except for the rash. I'm what you call a "mixed bag"; I had three autoimmune diseases before DM and tested positive also for lupus with the DM. Complicating it even further, I have severe osteo which I have had since my 30's. There is not a single joint in my body which does not have osteophyte formations. Complicating it even further than further, since I have no active immune system, I have many drug allergies and have had nine near fatal reactions. However, I do have medications that I take for the DM pain: Flexeril, Oruvail, and Tylox. Even though I rested like I thought I should have, I still pushed too hard, and now I can barely go anywhere.

Anyway, there will be brighter and better days; I am sure of it!

I will e mail her.She has to see the new boards.I can't stay out of here today.You better rest.

Kelly and I thank you sincerely. I've never had a julip although I lived in Cincinnati, Ohio (next to Kentucky were "julips" was the drink.

Just wait until you see the finished product when Kelly has made all the configurations for having 10 bulletin boards from our website.

Have a good weekend.

I do this type of work because I love it and it just happens to pay the bills (most months :-) If I can ever do anything to help make this website more user friendly or enjoyable, please let me know. I read every post (well, Jim and I have every post e-mailed to us) so I keep on top of it pretty well. You can also send me an e-mail directly to kpmiller@tyler.net if you would like.

I'll let you know (or it should be pretty obvious) when I get the other message boards posted. We can still use this board as a "general meeting place" and the other boards will be more for specific topics.

I'll be in touch soon,

Kelly

We've missed you and your wonderful postings. Don't be a stranger any longer.

If anyone ever forgets their password or user name, please e-mail me and I can look it up and reset it for you.

Thanks,

Thanks,

We could not have this website if Kelly didn't work around the clock at times to keep upgrading the features.