Can't remember who's car accident...
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Hello all, I can't remember who's husband it was a few months ago...I think it was Susan's but I'm not sure, who had the car accident in front of their house. I was wondering how he was doing after the wreck. I don't really know what made me think about it was thought I'd ask how he was doing. Take care all, Kelly
(webmaster)
Related link: Webmasters of East Texas Website
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sleep all the time
My wife has DM and she also has a bad back. She takes oxycontin for her back pain plus she takes a couple anti-depressants among other Rx's. She falls asleep with food in her mouth and just falls asleep all the time. Does this happen to anyone else or is this just the pain meds doing this? It hurts to watch her be like this. By the way my name is Tony.
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Re: sleep all the time
I sleep now almost "all the time" at any time I wake up having fallen asleep at a table, or at the puter or watching TV. mostly when I lie down to "rest" and I am out. All night with maybe one bathroom call and it is hard to awake. The meds are doing this(BP,Depression,Dilantin, etc) plus the age(77 thui week). I think the boredom and depression are the main factors for me. If I shut my eyes, I am out. Never with food in my mouth(so far).Bye now ..sleepy?
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Re: Re: sleep all the time
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Hi Abe- I was happy to see you here.I always enjoy your post.Where's Mack? He can't be far behind. Don't you think it's extreme sleepiness to fall asleep still eating? You might aspirate the food into your lungs if your that out of it.I can sleep sitting up with my head on my hand but I'm aware of getting sleepy. Nite,
Jan/PM
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Re: sleep all the time
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Toni- That falling asleep with food in her mouth sounds extreme and dangerous.I get very sleepy and sleep a lot on anti depressants but would never fall asleep with food still in my mouth.Explain that to her doctor unless she has a sleeping disorder that doesn't sound right.Maybe her medicine dosage is too high.How many hours does she actually sleep? Staying in bed to long can cause muscle atrophy from disuse.I fell and hurt my back and had to be in bed for about a month and lost considerable strength in that time. Send her our best wishes and would love seeing her post on here too.You sound like a very caring husband.Look forward to hearing from you both. Jan/PM
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Re: sleep all the time :-)
Hi Tony,
Anti-depressants make some people sleepy; those combined with the oxycontin could be making her fall asleep. Talk to her Dr, perhaps he can change something.
Best regards,
Dorris
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Re: sleep all the time :-(
I take the same meds, and in an active flare, like right now the same will happen to me.. I think its the disease..I have a very active flare again. and the same is happening, so i go and lay down on the couch and sleep for a hour then i am ok..... if i am up and about, or at work, i just want to close my eyes, like they won't stay open...yes its the disease, i take anti depressants, oxycontin. and other rx s. and when the flare subsides i feel fine.. Hope i was of help hugs karen
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Re: sleep all the time
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Tony - Welcome to our family-type membership, hoping to see solutions and learn from each other about our specific diseases. You touched my heart reading about the condition of your wife and you being her caregiver without much knowledge of her disese. Tony, we have a "DM board" and "Caregivers" room. You may learn much personally if you click the buttons to the rooms and read what others have written who have DM and/or caregivers. Bless you, Tony
Jim-IBM
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pain patches
Has anyone tried patches for pain, and if so, with what results, side effects etc? My GP suggested these when I saw her last week. Unfortunately she is not allowed to prescribe them..silly law in Aus. I am going to the Pain Clinic next Friday and she said to ask him for them. I'm curious to know if they work. Sounds too good to be true. 72 hours pain free! I'll be doing the Highland fling next. Break out the McNish tartan. Cheers to all. Mary
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Re: pain patches :-(
Mary the patches worked good for me, to give me a break from the oxycontin.. The only problem is on day one it takes a full 24 hours prior to feeling any effect, and by the 65-72 hours, i could feel it wearing off. So the doctor prescribed something mild for the inbetween time like a mild tylenol #3.. other than that, make sure they are good surface and tape the edges, because i found they wer falling off.. make sure you ask the pain clinic all of this...Other than that, i used them for a month to take a break from the oxycontin.. oxy is a good medication also, but it is pill form. I only use oxy when in a flare such as now... The patches come in 25mg 50, 75 100.. see if you can start at 50 and then go to 75... 25, was too weak, and i never did the 100. I hope i was of help hugs Karen ( no side effects for me...) BUT THEY DO WORK, PROVIDED, YOU HAVE SOMETHING MILD FOR BREAKTHROUGH.. i actually had about 60 hours, after starting, of NO PAIN...yes its a great feeling....
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Re: Re: pain patches
Thank you Karen for the useful information. I will arm myself with it on my visit to the Pain Clinic. Actually I think he is a bit of a dill so I always come prepared. He admits he doesn't know much about myositis. I don't think he knows much about pain either.Re your email: there should be a command called 'block sender" so you don't have to keep hitting delete. I was driven nuts by some off shore gambleing lot who promised me a fortune, free money to start with etc. and I hit that button and I haven't heard from them since. By the way did you get the photo I sent you? I've been having trouble with my new scanner and wondered if it turned up. Look after yourself. Mary
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Re: Re: pain patches
Hi Karen,
I have thought about the pain patches. Are they water proof?
Would they stay on in a pool? I am in the pool almost everyday.
Hugs,
Dorris
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Re: Re: Re: pain patches
I never used them in a pool. If you are that interested, maybe your doctor could help with this. I was constantly sweating, so i had to tape them on to keep them on.. I used them in the late summer / early fall so i was always warm... Check with your doctor is there is a way to keep them on, or if you should use them in a pool... hugs Karen. i had a hard time, keeping them from gettting wet in the shower. But i don't think you want clorine getting underneath the patch, because its time released. Other than that, they are great...
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another cautionary tale..do I need a keeper?
Thanks for enquiries about my absense from the Board. I have to report that I did a very silly thing. I've been having a pretty bad time with peripheral neuropathy,(greetings to Susan and Dorris) and about 4am when it was still dark, I woke up in agony and reached to my bedside table and took 2 ultram. Nothing much happened, but not surprising because when PN hits, it really hits. Got up about 6 and took my normal 2 bloodpressure pills..then I realised I hadn't taken the ultram but 2 ace inhibitors. I've had a pretty ordinary few days, mostly spent on the toilet, they sure got rid of excess fluid, then with mild chest pains, so I decided to go very quietly. Feel a bit better today and I have learned my lesson. The BP pills are put away in a cupboard and will only come out once a week when I load my pill container. By the way, I found the doona! Mornings are getting quite chilly here,but the days are beautiful. Cheers to all. mary
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Re: another cautionary tale..do I need a keeper? :-)
Hi Mary,
We all do those dumb things, I am glad there was no harm done other than extra trips to the "library". With myo and all the ailments that can go with it, it is hard to make the brain work like it should. Take care and read all labels.8>)
Hugs,
Dorris
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Re: another cautionary tale..do I need a keeper? :-(
Mary i have done the very same thing. Not a good idea to keep more than one type of pill by your table, or have a flash light just to make sure.. What i did, was i lined the next couple of days/nights worth of soma and trazadone.. I ended up taking an extra trazadone, so i just slept some more.. Now what i do, if i have to take something at night, either use the flashlight or keep the pill bottle inside on the night table... Glad you were ok...Oh, just a reminder, if you have a pill container, and i do, make sure if you are traveling that you have that container with you..If you get stopped and they see that, they could question you.... all the best hugs,,,karen
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Re: another cautionary tale..do I need a keeper?
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Our Mary- I'm sure glad your o.k.We miss your post.Glad you found your"doona."I'm digging out my weeny bikini.Not!! Luv ya,
Jan
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We have a new member! Please welcome gaye ash
| Posted by Webmaster , 2001/03/26, 12:24:14 |
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gaye ash, Welcome to the Myositis Support Group Discussion Board!
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Re: We have a new member! Please welcome gaye ash
Gaye,
Welcome to a great site with a SUPER group of folks that listen to each other and help each other out. You will be impressed as we all are and have been. Stay in touch, Franklin
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Re: We have a new member! Please welcome gaye ash
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Welcome, Gaye - This new website beats the original one, doesn't it? You can post in any room you want. If you will post in the PM room, you will be able to read what others have to say about their PM. You can share your experiences with them. All you have to do is click "PM Board" I'm sure glad you're part of the group - where you will learn much, share, to be in a family-type environment much akin to our support group. Just a Myositis family team.
Jim
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