cheating this disease
Hi everyone and welcome to the new folks,
Please don't throw any stones at me for this but after reading so many posts over the past months I began to think. I do believe I am the luckiest PM'er around. While I have developed many of the prednisone side effects (diabetes, high blood pressure, muscle loss (lots), pain, and myopathy), I haven't experienced any of the other stuff. I don't remember mood swings, have had no sleeping problems, no depression, no tremors or electrical feelings, no hair loss or tooth problems. I feel at times I am cheating this disease even though it has a strong hold on me and won't let go. I feel for all of you and the things we go through except many of you go through more than I do. And to David, Jim and Kelly, I too cry at a lot of things. There is nothing wrong with a tear or two for any reason. Thanks to all of you for your inputs. The most consistant thing I am experiencing now is the pain. I didn't have any for 15 years but the last two have been almost unbearable. In that I know I'm not cheating PM. Thanks, and take care, Franklin
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Re: cheating this disease
Franklin for the longest while, several years, i had poly rather mildly, But the last two years have been terrible. I had a short remission of seven weeks and now i am worse. I am in constant pain. Every day there is almost a new symptom too.. I take oxycontin as needed, 20mg 3 times a day.. my worst is the morning and mid afternoon.. The fatigue sets in around 5 pm.. I barely am up 12 hours... I can't seem to push my time to stay up beyond 7 pm. I too wake up once or twice... Maybe yours will stay good and not progress. I hope so.. all the best Karen
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Re: cheating this disease
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Hi Franklin, I think we're all at different stages with the disease process.Your pain doesn't sound to good.But we have to count our blessings even when their hard to find. I hope your pain eases up.
Jan
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Re: cheating this disease
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Franklin - You and I are similar in our thoughts and feelings. Whenever I get so exasperated with IBM and it's effects on my body, I feel ashamed when I read of how so many others suffer, how they handle their respective situations and continue on with living. I think the BB offers us many benefits learned from others about our diseases, but also teaches us to look inward to ourselves to find the real person and a kick in the rear to keep a more postive attitude about our situations. There are always someone else is a worse shape - the postings and messages have proven that again and again.
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Re: cheating this disease :-)
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Dear Franklin, I am pleased as punch that you are cheating this thing! And speaking of punches, please throw a few for the rest of us. :-) Susan
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