DOCTOR???
What kind of specialist should I go to for a muscle disease diagnosis. A neurologist or a rheumatologist.? Thanks a bunch.
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Re: DOCTOR???
You can start with a rhematologist, he usually recommends a neorologist. I went to a rhemy then a neorologist. all the best Karen
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Re: DOCTOR???
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Alice, My family doctor sent me to a neurologist first.I would assume to rule out nerve diseases,such as MS,etc.but
eventually I ended up with a rheumy.Your regular doctor should make that decision. Jan
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dIAGNOSIS
HELLO: I am new to this group. I am in the process of being diagnosed or misdiagnosed. In March I was diagnosed as PMR and was put on 20 mg Prednisone and taken off two weeks later by a surgeon who found bond spurs in my shoulder and said that was there the inflammation was coming from (I believe a high sed rate) Can some one steer me in the right direction for an acurate diagnoses. I have lost most muscles in my arms; I need to use my hands to get up from a sitting position; absolutely can not climb stairs. I have fallen twice while trying to get up a step. Would you go to a neurologist and what tests would I need for an accurate diagnosis. Many many thanks for any one that can help me at this time.
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Re: dIAGNOSIS
I would go to both a neorologist and a rhematologist and they know all the tests, cpk, emg, muscle biopsie, sed rate.. hope i was of help. hugs karen.. (falling and weakness of the legs, cant climb stairs, difficulty getting up from a chair. Have it checked by one or both..
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Re: dIAGNOSIS
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Hi Alice, Welcome to our group. I also started falling,couldn't get up easily from a seated position,I could barely climb stairs,and had a severe reaction to be being in the sun for long periods.I was sent to a neurologist 1st,mainly to rule out other nerve diseases.He ran tons of blood test,checking for lyme disease,etc and he performed an EMG.I was diagnosed with sjogren's syndrome and polymyositis. I was then sent to a rheumatologist for treatment.He had a muscle biopsy performed to verify the diagnoses and to rule out IBM.I was put on 80 mgs of prednisone and later 7.5 mg of methotrexate was added to the mix. My cpk was never extremely high but I have a severe case of poly.If you don't get answers from this doctor keep searching,something is going on and early treatment is vital for a remission. I hope my history helps you.We have a terrific group of people here with great compassion and caring.We try to look out for each other. Jan in Arizona
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Re: dIAGNOSIS
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Welcome to the group - After reading about you falling, unable to rise from a chair, unable to climb stairs, tremendous muscle strength loss, I would highly recommend that you see the Neurologist. I had the exact symptoms when a Neurologist did a biopsy of the muscle in the upper portion of my left leg. The slice was split into three ways - sent to Dallas, to California and to Mayo in Rochester. All three reported I had IBM (Inclusion Body Myositis). The longer you wait to seek qualified help, the worse the problem is to treat and the worse your condition will become. Good luck - Jim
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We have a new member! Please welcome alice r. schawe
| Posted by Webmaster , 2001/04/22, 08:20:27 |
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family photos
It is really nice to see pictures of our friends on the Board. I think it must take a special skill to post them. I tried with an Australian Easter Bilby, but it didn't seem to come out. Kelly, please be an archangel and explain to dimwhits like me what to do. I'm not threatening to put me out for public display yet but he urge might overtake me. Greetings to all from not sunny Sydney.
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