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thanks for all of your information and support. I met with the doctor this morning and have a dx of myositis and Sjogrens syndrome. Anyway, I do get to reduce my pred. to 50 mgs per day while starting on Imuran (anyone have any info on this one?) slowly changing over the next couple of months or so from one to the other. I was also encouraged that my muscle enzymes have come down to just under 2000 from over 4000 so progress is being made. The sleeping issue is frustrating, I have to sleep sitting up. I cannot breath if I'm flat. I don't have the results from the muscle biopsy yet, but as I read through the information on the Sjogren's syndrome, it sounded about a right down the line as it could be. Have the battle is knowing what you're fighting I guess, so we're on the way. I do take the pred all at once as per dr.'s recommendation. I am concerned about the possibility of infection getting out of hand being on these immu/supress drugs. thanks again for all of your comments. I really appreciate them.
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