Hi Theresa, this disease is hard on everyone. I am at a point now where I have to realize I'm going into another phase of the disease. It is a hard pill to swallow. You do need to let your husband do as much as he can for himself. I try to explain that to my husband. If we can't do something, we will ask but as long as we are able to, it's best to do things, as little as they might be. The disease just slowly robs you of everyday things and it just sucks. I'm at the point now where I have fallen 2xs in a month and hadn't fallen for a whole year. I am now considering purchasing a power chair. We need to think safety. One poster said this becomes a very expensive disease because of all the durable equipment we need to live our daily lives. We all need someone to talk to and this is a great place to come to vent, ask questions and get advice. We are all different but unfortunately share this common thread and we are the only ones who really understand what the disease is like. Does your husband use the computer? Maybe it would be good for him to post and see that we are here for both of you.
|