hello my friend in Indiana,I have just now had a contac with an amateur radio in you State, but that has nothing to do with your questions.
If you can manage this board, read as many as possible of our stories. ou can find there reply to qoestion you have not yet posted.
You can immediately notice that each of one have developed a muscular disease in different way, may be a first diagnosis not correct. Just to let you know how fragile are the first hipothesis I tell you that at the beginning years '80 in occasion of a blood test, the CPK was higher than 1000. The doc, a family friend,said me, may be a miocardium problem, but I am a cardiologist and I am sure it isn't so, may be a muscular problem, but you jump every day on the mountain of our Valley like a chamois and this is impossible. At these times I think IBM was known perhaps only by few qualified Italian neurologist or not at all.
I had had a first diagnosis in 1995 and after 2 EMG, a muscular TAC in the tight and a biopsy in quads, the diagnosis was confirmed.
I go back to what I said before, we are not serial machines. At the contary of your situation my only muscles still in order (enough) are the muscle of the chest and the back. Other are a disaster including the throat muscles that giveme some problems due to disphasia.
I hope i haven't bored you with a story that don't give you any positive answer.
keep us informed and for now have my best regards and wishes
Giancarlo/IBM - Italy
Call me when you want, anyway call me even if I don't speak English. May be I give you an occasion to smile.