| Re: relaspe how many times -- paula Dempsey | |||
| Posted by margaret l ® , 2008/03/27, 19:44:07 | Post Reply | Top of Thread | Main Forum |
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PAULA, AS YOU KNOW, NO TWO KIDS ARE THE SAME WITH THIS DISEASE. BUT WEANING OFF PREDNISONE TOO QUICKLY CAN CAUSE A FLARE. GILSON STARTED TAPERING AFTER 6 MONTHS AT 20%OF CURRENT DOSE PER WEEK. HE FLARED AT THE 3RD WEEK. OFTEN HIS CPK AND ALDOLASE MUSCLE ENZYMES WERE NORMAL. BUT HIS QUALITY OF LIFE AND MUSCLE FUNCTION DO NOT CORRELATE WITH THESE NUMBERS AND STILL DO NOT. PEACE, MARGARET LEE AND GILSON LEE,9,5/1/2007
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