I know how u feel about all the test and results.I to feel overwhelmed.my son stays in the hospital alot and it seems at times that things are not going to get better.All the testand needles he has to take and all the pain he goes throught I too sometime question the dr.it hurts to even see him go throught these thing.he have been in the hospital for 2 mouths now with a whole lot of infection.we as parents have to keep the faith that one day everything will be alright. I have never knew anyone that had jm until my aunt found this web site and gave it to me and told me to go and look at this to find some kind of comfort from people that also has to go through this too.I cant hold a job because his jm has already took over his body.i always has to be home with him .he hasnt been in school in months.I tell u it hard but we have to keep the faith that one day they will find something that will help that kids that has jm. live and learn
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