Mike, I feel that the meds often don't work, and that it is just like throwing the dice. I have only been dxed since 8/06 but i wonder if the drs really know what helps, or is it that somehow they find something that helps.I have been on prednisone, methetrex., and now rituxan.
I go to PT and feel that that is helping to some extent but
if i overdo it, the weakness is back.
My CPK is in the 200's.
amyhow, you wonder if the meds just make it worse/ or fix one or two symptoms/ but the side effects..........yikes.
Take care, sounds like alot of people are feeling the same way as you/
trurose