Remission?


Posted by Annie Williams ® , 2008/03/04, 17:43:14 Post Reply   Main Forum
Good Evening:

I haven't been on the forum for several years, and I had a question. I was diagnosed with PM in 1999 and was on IVIG for 7 years. I stopped IVIG in 12/2006 because my CK's were normal, and I wanted to stop getting infusions. My neuro put me on Cellcept, and I weaned off that in 10/2007. My symptoms of pain, weakness and fatigue never completely went away, but I did really improve. In the last 3-4 weeks I've noticed my legs are getting weaker, and I had problems swallowing yesterday. I'm also experiencing that really icky fatigue.

I can always go back on the Cellcept if my CK's start to creep up again, but it's got me kind of down. I was so hopeful because in the last 2 years I started meditating, doing yoga, and eating natural foods.

Has anyone else had a similar experience?
--annie
I make all natural skin care products at www.SlipperyTurtle.com

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Re: Remission?
vee [ Mar 18, 15:30, 2008 ]
Re: Remission?
Lakisha Heath [ Mar 07, 06:52, 2008 ] +1
Re: Re: Remission?
Annie Williams [ Mar 07, 17:18, 2008 ] +2
Re: Re: Re: Remission?
Greg Fountain [ Mar 08, 20:12, 2008 ] +1
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bill simeral [ Mar 09, 10:21, 2008 ] +1
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Greg Fountain [ Mar 10, 19:53, 2008 ] +2
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bill simeral [ Mar 10, 20:26, 2008 ] +1
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Greg Fountain [ Mar 11, 21:41, 2008 ] +1
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bill simeral [ Mar 12, 07:11, 2008 ]
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bill simeral [ Mar 10, 20:21, 2008 ]
Re: Re: Re: Remission?
bill simeral [ Mar 08, 12:36, 2008 ]