Good Evening:I haven't been on the forum for several years, and I had a question. I was diagnosed with PM in 1999 and was on IVIG for 7 years. I stopped IVIG in 12/2006 because my CK's were normal, and I wanted to stop getting infusions. My neuro put me on Cellcept, and I weaned off that in 10/2007. My symptoms of pain, weakness and fatigue never completely went away, but I did really improve. In the last 3-4 weeks I've noticed my legs are getting weaker, and I had problems swallowing yesterday. I'm also experiencing that really icky fatigue.
I can always go back on the Cellcept if my CK's start to creep up again, but it's got me kind of down. I was so hopeful because in the last 2 years I started meditating, doing yoga, and eating natural foods.
Has anyone else had a similar experience?
--annie
I make all natural skin care products at www.SlipperyTurtle.com