A Message of Vital Importance

My heart is breaking as I write this - something that should have been done months ago.

My health has taken a drastic turn for the worse - IBM and Osteomyelitis (leg bone shattering disease) are fighting each. Please do not think this is a pity-me-party. It is a letter to let you know of the seriousness of my health condition.

I was dx with Osteomyelitis 66 years ago; dx with IBM in 1991. In the 1996 flare of the Osteo I was in ICU at Medical City Hospital, Dallas, for three months, having ten surgeries in six days never expected to live according to my 13 physicians and surgeons.

For the past six months I've felt the Osteo trying to flare. In the past three weeks I've been playing musical hospitals locally and larger hospitals, attending the therapist daily having my leg soaking in the hot water therapeutic whirlpool which has helped by using silver patch on leg and leg wrapped in gauze.

The infectious doctor wants an orthopedic surgeon to remove my right leg which I flatly vetoed.
The numerous reports taken were entered into the surgeon's computer that printed out that nothing else would help but the removal of the leg to save my life.

My Internist has doubly increased the MG's for the pain medications I am on, so I have little severe pain I can't handle.

The physicians agree the possibility of the bone inflammation might already is into my blood stream which can cause my death within a few minutes - which is the way I hope to die, at home in my own bed.

With Dan the Man's help which has kept me alive so far, my extra uncovered medical expenses exceed $3,000 average monthly. To be perfectly honest and forthright, I can not longer afford to financial the Myositis Support Group website any longer. There are less than a dozen members around the world who give monthly toward the expenses. I began the website with my son's insurance, paid the upkeep myself with Kelly donating 1000's of hours free all these years,

Unless I can sell the website who will keep the website maintained, at my death Kelly Miller, Webmaster, will post news about my death and funeral, then the website will go off the Internet permanently. I own the domain name until May 2009. The website innards, using the numbers of posts, ascertains the selling price of the site, but could be negotiable.

I've had a wonderful life even with IBM - able to publish "Coping with a Myositis Disease," printing a monthly 8-page newspaper until May 2006, began the website in 2000, began several Myositis support groups and speaking at civil groups, other support groups and Neurologists' meetings. I feel no embarrassment in saying I cannot carry the financial load alone any longer.

I hope I feel like posting as long as the website is on the Internet. Thank you all for making my life worth living., something to look forward to every morning and through the day.

Bless you each and everyone,